Friday, 29 June 2012

Have your say

Do you use a VEO? (All the best people do) and want to make your voice heard?

A little birdy dropped me a line today saying the following:


Medtronic seeks market research participants for new diabetes technology

Interested families should contact Sophia DeRham at
sophia.de.rham@medtronic.com

We are looking to recruit 15-20 people (total) in the following categories:

Group 1: Parents of Medtronic Veo pumpers of below 12 years, using sensor for at least 6 months

Group 2: Parents of Medtronic Veo pumpers of below 12 years never used sensor

Group 3: Adult Medtronic Veo pumpers never used sensor, at least 6 months on pump therapy, age range 20-45

Group 4: Adult Medtronic pumpers using sensor for at least 6 months / at least 6 months on pump therapy, age range 20-45

Group 5: Adult Medtronic pumpers that have stopped using sensor, at least 6 months on pump therapy, age range 20-45



If this sounds like it is for you, then drop Sophie (I want her surname!) an email and take the chance to have your voice heard!

Thursday, 28 June 2012

When others know best

My best friend Lauren and I have known one another now for 18 years. We met at the age of just 11 at school and of course, knew all there was to know about life. Like, what Leonardo DiCaprio's hobbies were and that school was really just about learning how to copy home-work and still make it look like your own.

Almost two decades later on and things have changed. A lot.

For starters, Leonardo DiCaprio never came knocking and judging by his preferences, I'm not sure it would have worked out.....And school was, in fact, for learning how to copy home-work and make it look like your own.

Nowadays we have both grown up, settled down and even got ourselves 'real' jobs.

Amazingly despite hating school and having a diabetic as a friend, Lauren decided not only to branch into the world of teaching, but also to specialise in the care of diabetic children, meaning she is one of the few golden people without diabetes who 'gets it'. I'm lucky in that I have always been blessed with people who sympathised and gave a damn. But in many ways Lauren has the knowledge you could expect only the parent or partner of a diabetic child to have.

Where we once had all the time in the world, finding time to just 'hang-out' these days is a very rare occasion, but this weekend Lauren and I stole a few hours to celebrate, albeit belatedly, her birthday. So we packed a picnic and headed for the hills - literally.

Halfway through our delightful afternoon, my 'spidey-senses' kicked in and I could feel a hypo brewing. I had already eaten and knew that the high fat contents had slowed down the high-sugar treats (oh come on, it was a birthday!) from entering my system. But I was still panicking. The hardest time to be calm, is during a hypo.

Worrying that I had eaten all the food we had and had only just run out of lucozade, I started to freak out, just a little. We were, after all, at the top of the hill with only one roll and half a glass of wine left.

But Lauren, with all her training on diabetes calmly said, "Give it 15 minutes honey,” and carried on telling me a story.

Of course despite nodding and saying 'yeah of course you're totally right', in my head it went more like this:

"ohmygodwehavetogofindsomesugarnowIamgoingtodie!"

Begrudgingly, knowing that she was probably right but so worried I could only half concentrate on what was being said, I held on.

Low and behold after 15 minutes of worrying I had jumped from 3.2 (and very ‘wobbly’) to 5.4 and finally able to concentrate again.

It’s funny how sometimes other people really do know better than you.

For a stubborn old bag like me, that’s a toughie to accept



Monday, 11 June 2012

Armed with my Google degree

‘Low-carb’ - the words that strike fear into the hearts of potato-lovers the world over and cause others to protest its value with great conviction; how it ‘changed their life’ and so on.

So what is the deal with low-cab? Is it good for you?

I am not qualified in any way and most of my information is either a discovery of my own clumsy experiments or, the wonder of Google. Enough said, right? But ‘we’ are always arguing that diabetics are the most knowledgeable of all, so here is what I found when trying to find a way of moving to a low carb diet.

About 2 years ago my journey on the pump led me to address my diet and stumble across a book called ‘The Diabetes Diet’ by Dr. Howard Bernstien. ‘Diabetes Diet’ eurgh, like I haven’t seen enough of those! And is he even a real doctor? Anyone remember Dr Gillian McKeith; the so-called Doctor who, as it turned out, gave herself that name and was wholly unqualified to give anything but her personal, slightly unhinged, opinion? Well, I was fully expecting ‘Dr Bernstein’ to be more of a Mr, than a Dr.

Well as it turned out he was a Doctor, a type 1, and was one of the key thinkers behind the whole low-carb revolution in the US (you know, other than Mr ‘shove some more cream in that coffee’ Atkins, that is). As a type 1 patient himself, he discovered some decades ago that carbohydrate was beyond any doubt, the most impactive form of food on his system. And further that these chaotic blood sugars were the cause of most – if not every - complication we ‘duffers’ spend our lives trying to keep at bay. But as a patient, he was practically laughed out of the clinic when he suggested eating low-carb. So what did he do? He got himself re-qualified as a diabetic professional of course, and began his mission to address the education about carbs. That’s one determined dude!

Enthralled by the book I began to make lots of changes to my own diet, with wonderful effects. Eggs for breakfast, removal of pasta and bread and no more high-sugar fruits were the main changes. As a result, I felt great: my blood sugars were vastly improved, I was never as bloated thanks to far less wheat in my diet and after following it strictly, achieved my first ever A1c of 7%.

But I am regularly reminded by dieticians and nutritionists that by lowering the carbs, I have to increase something else in the diet. My intake of healthy meats like tuna, salmon, trout, turkey mince and chicken went up and my consumption of 'crap' went down. But as someone whose greatest diabetes fear is kidney failure (dialysis scares the shit out of me, quite frankly) thoughts about renal disease thanks to the extra stress that the digestion of protein puts on the kidneys, regularly creep menacingly into the back of mind. My defensive argument has always been that low carb doesn’t have to equal high protein.  A statement usually met with the groans unconvinced 'experts'.

But here is why I stand by my assertions, thanks to my Google research. It is recognised that a healthy person should only eat around 0.8 grams of protein per 1kg of body weight. Now, at 140 pounds/10 stone (in a healthy weight bracket with a fair bit of muscle) then I could consume up to 67 grams of protein a day, ‘healthily’. On an average day I would normally eat a two-egg omelette (12g protein), a small handful of nuts mid-morning and mid-afternoon (8g), a tuna salad with lots of red, yellow and green leafy veg (20g, a generous estimation) and for my evening meal I may have something like salmon and vegetables or turkey mince spaghetti bolognese with green beans instead of spaghetti. Let’s call it 10-30 grams of protein to cover all bases.

According to that, even if I had the most protein-heavy dinner I can find, I am still only at 70g, when the recommended daily intake even for those with stage three kidney disease (according to Livestrong.com), would be around 67g for someone of a healthy weight. In fact, on days when I have only a tuna steak or chicken thigh (easier to eat organic when you buy the less popular bits!) at 20ish grams, then I am 7 grams under the maximum.

So, with my Google degree and knowledge that I really am only eating medium protein, I continue to be convinced that low-carb, medium-protein and ‘stop faffing about fat’ attitude is the way to go.

The question you have to ask yourself is this; when the renal capacity of your kidneys is 8.8mmol, is it safer to eat low carb but accept carb-fuelled spikes after meals, or is it safer to eat more protein and maintain near-normal blood glucose?

Anna (off to eat a handful of minimal carb, nutrient dense and protein rich nuts).

Friday, 1 June 2012

Football, beta cells and temporary basal rates

Luckily for me, the self-defined 'lazy' Tim and Alison over at Shoot Up or Put Up were not in a position to attend the recent Animas Sports and Exercise weekend after being offered a spot as avid diabetes bloggers.  So thanks to my misguided enthusiasm and well-documented struggle with exercise, they offered me their spot.

So hoping you will find some useful info in here, this post is about the weekend in general, and here is a post about what we learned about exercise and diabetes.

Happy exercising!

Thursday, 24 May 2012

Unconventional cock-ups

There is a very good reason the insulin pump comes with a low reservoir warning alarm; we need insulin.  It's kind of the point of an insulin pump.  Without it, us pancreatically defective people have a time limit, and a pretty short one at that.  The low-reservoir alarm is our lifeline to making sure the pump is never out of insulin.  But when your pump is alarming for hours upon hours and - like me - you don't want to change the reservoir early wasting what insulin is left, you can lose track of the dwindling units. 

Last night I managed to go to bed without having stocked up on insulin (I blame the wine) and must have run out somewhere between 8mmol (11pm) and 17mmol (4.45am).  So my super-sleuth skills tell me, anyway.

In my fuzzy haze of high BGs I managed to change the reservoir, find a comfy spot in the bed again and return to the land of nod.

But today my slightly unconventional method of basal-testing (checking your background insulin dose is correct) has revealed that I have in fact been having a series of overnight hypos.  How do I know this?  For the last couple of weeks I have been having sugars of 15/16mmol during the day with no explanation of why.  I had put it down to my body not agreeing with the oh-so luxurious lunch of Ryvita and Cottage Cheese (hell on a plate) I have been adopting as a low-carb higher-protein lunch, but today I have barely strayed from 6mmol.  The only difference, tellingly, is the guaranteed lack of hypo.

I wouldn't suggest that attempting to go it alone without insulin (which works out less than unsuccessfully the rest of the time) is the way to carry out some decent hypo-testing, but in a backward and very unconventional way it has sorted out my little predicament.

It has also proven that I am most definitely and unequivocally, still a diabetic  :)


Wednesday, 23 May 2012

Flashbacks

When you are a person with diabetes - particularly one who talks like an AK47, mostly about diabetes -  it's pretty normal to run into a few questions here and there:


'How do you control it?' 'When were you diagnosed?' Or, everyone's personal favourite, 'Are you allowed that?' Most of us in the diabetic community, online or otherwise, have the answers which have stood the test of time in a special 'diabetic FAQ' file in our heads.

"I use an insulin pump". "25 years ago when I was four." and "Yes I freakin' well am!"

But this weekend was different. As I boarded my train to the Input Insulin Pump roadshow, my best friend called me.

"Anna, what do I do if a friend who stayed at my house last night just told me they are diabetic, but don't have their testing kit or insulin?"

What?!

As I unravelled the story and discovered that despite my friends attempts to get to a pharmacy to buy some hypodermics, some insulin and a testing kit, her sofa-surfing stowaway was protesting that he was 'just fine'. Of course, having been without any insulin for about 16 hours, and having been drinking the night before the chances he really was fine, were slim.

"He reminds me of you when you were 17."

Of course, I never skipped insulin and I would always tell people I was diabetic, but despite my initial shrugging off that we were anything alike, a flood of feelings came rolling in that left me thinking about this guy, how he felt and why he didn't tell my friend about his condition.

I hated diabetes too. I didnt want to be different, either.

Maybe we were alike. Maybe I was like that.

It's very easy to shake heads and wag fingers at people who do this kind of stuff. How can they? Why would they? But it left me thinking about my own journey. From somewhere on that wavelength, where blood tests were a pain in the backside and injecting was something that separated me from others -  a burden, a punishment - to a place where insulin pumps bring us together and our story is something to share; something that unites us.

My friend knows that just as soon as he is ready, she can give him my number. I will always talk. I will always listen. And when everyone is wagging their finger and playing the blame game, I will remind them that I too walked that path; mine was littered with fear, contempt, anger and isolation.

My pump, and the subsequent introduction to a diabetic community millions strong, brought about my eventual acceptance of the life I would lead and heartfelt gratitude for what you all would bring me.

I hope he too finds that way. Be it now, or tomorrow.

It is never too late.

Tuesday, 15 May 2012

'InPuT' Roadshows head to Chester!

Well it's that time again; the time for InPuT (the UK's INsulin PUmp Therapy advocacy service) to head out onto the streets and hit your local town to tell you about who can have access to a pump and how to get the ball rolling.  The Luton Roadshow was a resounding success and we've had some fantastic feedback from people who came along. If we can continue increasing the number of people who get to the exhibition, I am hoping there will be dozens more pumps on order by the end of the year - so you should prepare yourself, Mr NHS.

This time, it is the turn of Chester to kindly play host to the InPuT team and we will be coming along to MacDonald New Blossoms Hotel, St John Street, Chester, CH1 1HL between 1pm and 4.30pm with a wonderful bunch of insulin pump companies.  So we invite you to come along and have a good look at some of the pumps on offer in this part of the world, ask questions of those who wear them and get advice on whether or not you can get funding for one.

Here is the poster with full details!


The InPuT team look forward to seeing you there!