Friday 18 April 2014

Open Letter to Matthew Wright

Dear Matthew,

As I fired up my Twitter account this evening because of the conversation flitting around social media about the comments you had made about 'diabetes', I was intrigued about what you could possibly have said to rile a whole community so.

I navigated your Twitter feed and could see that many had not seen the item on today's 'The Wright Stuff, show which had sparked such controversy.  You invited the diabetes 'trolls' (as you referred to them) to go and watch it, so I did.

Which part was it, exactly, that you wanted me to watch before making any ill-informed remarks?  I don't intend to put forward any fallacious points so please, let me be sure we are on the same page. Was it the part where you asked, "Does every little child deserve a tooth-rotting, diabetes-triggering chocolate egg at Easter?".  Or was it the phone-in during which regular insinuations were made that chocolate Easter eggs could, according to your opening link, 'trigger diabetes'. Which ever part it was, I watched it. 

It doesn't surprise me when people ask me if I got diabetes from eating too many sweets as a child, because most of the world is poorly educated on the subject of type 1 diabetes.  It saddens me.  It saddens me immeasurably - but it doesn't surprise me.  Truth be known, I am not someone who usually alights my soap box and gets all together vocal about this issue because I understand completely why they don't: their lives have not been touched - or devastated - by type 1 diabetes.  What do I know about sickle cell anaemia?  Nothing.  What do I know about Leukaemia?  Nothing.  What do I know about multiple sclerosis?  A little, because my life has been touched by it. But then Matthew, I am not the host of a current affairs television programme which invites the viewer to join in and broaden their minds.  Neither are the people who make their badly thought-out and even more poorly delivered comments to me in their attempt to sound interested in something they can see affects my life so greatly.

Perhaps I am not giving you enough credit, Matthew.  Because it seems highly unlikely to me that you find yourself scrolling through hours of peer-supported reviews and up-to-the-minute publications of an afternoon, in order to prepare the auto-cue wording for your daily show.  I find it much more likely that someone on your production team does this.  Sadly, that person has failed to do their job to even the most basic of standards.  Had they searched the Internet for even 10 minutes they would have been able - very clearly, very easily, and with great accuracy - to understand that chocolate does not cause type 1 diabetes.  In fact Matthew, according to the Guardian article you posted on Twitter in an attempt to back up your 'argument', it does not cause type 2 diabetes either: sugar may be linked to Type 2 diabetes, chocolate is not.  And neither is linked to type 1.  

It is a sad indictment of our society that a current affairs show with you at the helm, can make such a foolish, careless and stigma-laden comment. But perhaps the saddest thing of all is that when you were challenged on Twitter and asked to recognise the seriousness of type 1 diabetes, and in doing so think about the way you might feel if it was your own child carrying the wildly-inaccurate but oft-used label, your response was "I can think of worse".  Yes Matthew, I imagine there are worse things than type 1 diabetes.  I imagine holding your dying child in your arms is worse.  I imagine Gerry and Kate McCann would give anything to have Madeleine back, even with diabetes.  But does that in any way diminish the devastation that type one diabetes can have on whole families?  Do you know what that diagnosis really means?  Do you understand the dangers complications and minute-by-minute attempts to manage it?  Do you understand the way a parent feels when their child is labelled as having 'deserved' their type 1 diabetes, because mainstream media continues with such vigour to report this utterly erroneous nonsense?  I doubt it.

And let me tell you this, perhaps the greatest irony of all in your item today; chocolate is good for people with type 1 diabetes. In fact, it is an extremely useful tool in the diabetes arsenal. You see, the fat in chocolate causes a slow, steady and reliable release of the energy within the snack; something diabetes specialists know, and now recommend as a snack for anyone whose blood sugars have a tendency to drop at a certain time of day.

In fact Matthew, having watched the show, seen the tweets and really thought about my response, it is this which I have asked myself the most: why even mention diabetes?  Neither type 1, nor 2, was a discussion point of the item.  Neither one is linked to eating Easter egg chocolate (which has about as much 'sugar' in it as a bowl of fruit and yogurt).  And neither one would have made the piece about Easter eggs and whether or not they should be given to children, any more relevant. 

What it did achieve was to demonstrate that The Wright Stuff is willing to use a medical condition - one fraught with stigma, misrepresentation and which (quite clearly) not enough is known about - as a way of making somewhat mundane links sound sexier.

Sadly, my only experience of your show will be both my first, and last.

Yours faithfully,

Anna Presswell

36 comments:

  1. This comment has been removed by the author.

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  2. What a brilliant, well thought out letter. Hopefully the idiot will read it and respond in a sensible manner, but I doubt it. I haven't watched the show and won't because my blood pressure is high enough as it is - I wonder if that was caused by too much chocolate too? Must ask Matthew Wright!

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    1. He only reads auto cues ...

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  3. Thank you from the bottom of my heart for an extremely eloquent letter.

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  4. People who blame diabetics for getting diabetes really should read this. She talks mainly about Type 1 but most of her points hold true for Type 2 (which I have) as she points out. I'm fat. I eat the 'wrong foods', but then so do most people. It doesn't mean I deserve the daily injections which cause me such distress and pain. It doesn't mean I should have to live with the pain of neuropathy along with my other medical conditions. It doesn't mean I should have to live in fear of going blind or having parts of my body amputated. It doesn't mean my Mum should have died at the age of 47 or that I should worry about my own mortality.

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  5. Well written response. Im fed up with the stigma and so many people misunderstanding diabetes and what its like to live with. I was a fan of Matthews show but no more! It was irresponible, thoughtless and incorrect of him to perpetrate what is already widely misunderstood in this way.

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  6. Laura Hailstone19 April 2014 at 02:32

    I would like for 'The Wright Stuff' show to investigate the causes of type 1 and type 2 and announce their findings (preferably with an apology for their poor choice of wording and lack of education of this subject.) This stupid ill-informed comment can be dangerous for our all the type one diabetics in the country, especially if they are having a 'hypo' and need help (when having a low blood sugar the diabetic's brain often can't function properly due to lack of sugar and often needs someone to help them as they can slip into a diabetic coma.) This type of comment in a public venue (and I've been told it was televised) also undermines a lot of diabetes campaigns that are trying to educate people on the types and symptoms of type one diabetes. My son was diagnosed type one at 18 months and previously I knew nothing about type 1 diabetes. As I knew nothing about the condition I didn't know the symptoms to look for and it took weeks before the doctors and I could pin point exactly why my son was starving to death before my eyes even though he was eating. When at hospital my son had to undergo evasive treatment to keep his small skeletal body alive, I burst into tears believing it was all my fault despite the fact that he ate balanced meals along with treats, and doctors and nurses immediately educated me on type one diabetes and its causes- an autoimmune disease, believed to be a genetic trait and in no way caused by lifestyle. Diabetes campaigns are trying to get people to understand what type one diabetics and their parents go through and to stop this lack of knowledge creating such traumatic diagnoses stories. You are watched (and believed) by the public and your show has a responsibility to announce facts, please help our campaigns by not spreading such rubbish that many will believe

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  7. Thank you for such an intelligent reply. My son is type 1 and we were fuming yesterday and this is exactly the reply I would have like to write but was too cross. I have no experience of type 2 but maybe Matthew weight should invite Sir Steve Redgrave on to discuss his overeating of chocolate etc and unhealthy lifestyle that made him ' deserve diabetes' now that I would watch he he

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  8. Thank you! This is incredibly well written. I have type 1 diabetes and chocolate did not cause my development of the condition and happens to be one of my favourite snacks! I am personally (and I know I am not the only one) fed up with the ignorence of a lot of people on diabetes. The comments by mr wright were flippant, completely out of line, hurtful, insensitive, and not relevant or necessary. This needs addressed and mr wright needs to be spoken too as he is accountable for what he says but I doubt that will happen.

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  9. So glad someone was brave enough to put Matthew Wright in his place.

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  10. Imagine the uproar there would have been if Matthew Weight had claimed, for example, that eating chocolate make people become gay? That's an equally preposterous and unfounded claim which I am quite sure he would never consider making, so why does he think it's ok to spout such rubbish about people with diabetes?

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  11. Thank you for your letter. My son was diagnosed type 1 at the age of 10. It has turned all our lives upside down emotionally and physically. We never get time out or a holiday from this awful condition. Every item of food and drink that passes through his mouth has to be relentlessly and accurately calculated to enable him to get the exact amount of insulin that is required to keep him alive. Unfortunately being type 1 means his own body has killed his pancreas and he can no longer produce his own insulin.

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  12. Thank you so much four such an elequant response to a sadly misinformed Mr Wright. I have a 13 year old son diagnosed with Type 1 at just 6 through no fault of his own or mine. Even after all this time he is still asked if it was because he ate to many sweets and he understandably becomes upset as he his small for his age as diabetes has hampered his growth. There really does need to be a lot more information for the general public to be able to understand that this is a chronic life long condition, for which there is no cure.

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  13. Oh my god you are brilliant Anna. If you are not writing professionally, you are gifted- and should be. Good for you for writing such an excellent pice.

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  14. Well done sweetheart - well done for writing this blogpost, for being a supportive voice for others with diabetes and for being an educating voice for those who know nothing about the daily struggle that is diabetes. In amongst all the sadness I feel that you have had to deal with this since the age of 4 there lies such pride in you - that you can find such strength, courage and passion and that you are helping so many others to conquer diabetes, one day at a time. Your proud Mum x

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  15. Thumbs up Anna! Very very well written!

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  16. Thank you everyone for taking the time and effort to put your thoughts and feelings down as a comment. It is wonderful to see so any passionate and outspoken voices on such a global issue.

    Sadly Matthew Wright has chosen not to respond to the points raised in the post, instead keeping comments to 160 characters on Twitter.

    Thank you again,

    Anna

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  17. Thank you Anna for writing such a brilliant letter. You have expressed it exactly as I would have done, although far more eloquently. I found the whole thing extremely sad, both how it highlighted the widespread lack of knowledge about type 1 diabetes, and Matthew's Wright's aggressive and persistent responses. But I think we can use this as an example to support the case for renaming t1d which has become ever more necessary since the whole sugar thing hit the news earlier this year.

    Deborah x

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  18. What a lot of nonsense!
    These complaints are more about parents who don't like their type1 kids compared to the overweight type2 middle aged.
    I'm sure the overweight type2 middle aged like being told by type1 kids parents that type 2 is mot real diabetes.
    Nobody even said chocolate causes type1. The inference was the sugar in chocolate (about 50%) which can make you fat can trigger diabetes, diabetes being a colloquial name for both types. Blame the English language for that one.
    People say smoking causes cancer, that's not completely true, go attack them. Oh no I forgot, that's somebody else's disease, let them fight their own battles.
    This maybe a childish uneducated letter, but I am happy to admit I don't know everything about everything like you people do.
    If you're not adult enough to see a throwaway line in its context then I pity you.
    Love from a fat middle aged type2 sufferer who knew nothing about diabetes or cared before I got it.

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    1. Hi anonymous,

      Sorry you feel this is nonsense. I make reference several times to the other illnesses in the world that I know nothing about, but I would still never make 'throwaway comments' because of the disrespect it shows and the fact that stigma doesn't need to be encouraged. I'm surprised that as a type 2 labelled with frequent comments like this it did not bother you! After all, only 70% of people with t2 are overweight.

      I have as much of a sense of humour about diabetes as the next person, but I expect more (rightfully so!) from a current affairs programme purporting to be a balanced view.

      And have you watched the piece? There was no inference at all that sugar caused weight gain which caused type 2. The piece was about chcoclate Easter eggs. 'Diabetes' was used as cannon fodder for entertainment purposes. The guardian article (from what I could see) was the first time anyone made a connection to sugar leading to obesity which leads to type 2.

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    2. And I'm sorry if you feel that this post is about not wanting to be seen as a 'type 2'. If you read around the blog you will find numerous posts where I am dismayed and frustrated by that sort of attitude.

      I am a fat type 1, one who recognises weight is not just about eating a certain way. But that makes careless comments and stigma even more damaging, in my view.

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  19. Thank you Anna for putting into words how all us T1 parents feel. Its hurtful that Matthew Writes'
    response on Twitter was so dismissive if he has apologised he wouldnt have all this backlash now xx

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    1. Thank you. he did himself no favours at all. He came across as very abrupt, rude, ignorant (and not vaguely interested in learning about something).

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  20. Thank you Anna. What Matthew also ignored was the fact type 2 can also be caused through genetics. I was a time bomb. When I was a child I was tested every year because my paternal grandmother died at an early age from diabetes' complications. By the time I was diagnosed with it, 3 out of 4 grandparents, my father, younger sister, and at least one cousin had it. You also have to really blame his research team. Alot of his knowledge comes from them. In the past few days I have complained to them about a different subject.

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  21. Absolutely. The whole 'chocolate triggering it' thing was clumsy, ill-informed and disrespectful. There are so many causes of diabetes (and I think someone above pointed out that there are even 14 different types!) so they should have done far more research and not made such irresponsible comments.

    I'm sorry to hear that D has had such a marked effect on your family. And that the poor knowledge out there means you probably spend far too much of your time trying to explain that genetic link to people. Thank you for popping on here though and for telling people about your journey. Let's hope MW is watching, even if he isn't joining in!

    I hope someone gets back to you about the other point of correction, too.

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  22. Hi Anna. Well done for putting this so well. I too have tried to explain to Matthew Wright why his comment was factually incorrect, but it seems he has only chosen to engage with those who insult him rather than those who seek to help him understand his mistake. I really can't understand his mentality here. Surely it would be more productive to ignore the abuse and engage with the reasoned debate?
    Another guest on his show recently offended nut allergy sufferers, but had the common sense and decency to apologise even though the offensive remark was meant to be light hearted. Matthew could learn something from her.

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  23. My Dad's currently having his fifth surgery to remove a dead digit (a finger in this case), he's lost some toes, half a thumb and can no longer play guitar, a lifelong passion. He's got kidney failure, heart failure and a host of other conditions all caused by type one diabetes. Was he fat, at age 11 when he was diagnosed? No. His family couldn't afford chocolate back in 1959.

    I'm sick of people looking at him in a wheelchair and making up their mind that he's there because he's eaten the wrong food. He doesn't drink, or smoke, and until his first heart attack 20 years ago he worked outdoors in a heavy manual job.

    I'd like to thank you for your letter.

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  24. Dear Anna,
    Your Open Letter to Matthew 'Wrong' is perfect!
    Thank you.

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  25. Anna I love the letter im a diabetic T1 myself and my daughter was recently diagnosed the same. I admire the fact you didn't attack him just challenged him. He made it worse when he got Dr Bull (@#$/) to make reference to T1 and T2 and still was wrong he said something to effect of T1 are born with it

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  26. Oh no, now the authorities will know my parents were buying me chocolate on the black market as a child when it was still rationed. Thanks Mr Wrong!

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  27. Thanks Anna for educating us all on a regular basis, it takes effort to be a spokesperson. As always here you are informative, good humoured, compassionate-shame the same can't be said for some of the media including it seems a gent of whom I have never heard called MW , I shant be tuning in to check him out, life's too short for inaccurate media soundbites.

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  28. Get a sense of humour and stop removing the comments you don't agree with.

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  29. I too have tried to explain to Matthew Wright why his comment was factually incorrect, but it seems he has only chosen to engage with those who insult him rather than those who seek to help him understand his mistake. I really can't understand his mentality here. Surely it would be more productive to ignore the abuse and engage with the reasoned debate bike club name ideas

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  30. THANK YOU THANK YOU THANK YOU! Serious Diabetes is and heartbreaking to anyone who deals lives with it. My son is a type 1 diabetic since the age of five. Like previously noted there are worse things in the world. Now at the age of 20 without steady employment he still relys on me for his insulin. With all the OBAMA care changes in my use to be great insurance, I now have a huge deductable with lousy prescription coverage. I have to pay out of pocket just for 1 or his scripts for 1 month $272.00 almost $500 a month just for both insulins. Not including test strips needles and the $800.00 every three months for a doctors appt so they will continue to write his scripts. The goverment allows the price gouging on insulin, doesnt allow people to buy insulin cheaper from Canada and my son doesnt qualify for anything since he is covered under my insurance. WHAT HAPPENS TO THE PEOPLE WHO CANT AFFORD TO BUY INSULIN!!!!

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